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Nursing times

When chronic pain and the results of a nasty spinal infection made mobility increasingly difficult for Bethann Siviter, she thought her nursing career was lost forever. But nearly a year to the day later, she returned to work as a nurse consultant

Bethann SiviterAlmost a year to the day after I thought I’d lost my job and my independence, I moved into a new office.

Four months previously, Occupational Health had referred me to the Access to Work (AtW) programme, through which every aspect of my working life was assessed. This resulted in comprehensive recommendations covering – and funding – everything from a vertical mouse and specialist chair to a scooter and support worker. Wonderful!

The initial transition was difficult. My union representative wasn’t well versed in the Disability Discrimination Act (DDA) and my manager wasn’t keen on disabled nurses, but our diversity lead and AtW adviser were confident that with time and reasonable adjustments I would find my way. My employer provided adjust­ments, a flexible schedule and most of the time, acceptance.

One difficult thing was the constant commenting about my scooter, like “Don’t run over me!” or “Watch out for speed cameras!”…I wanted to scream: “Stop looking at the scooter!”

I felt that people stopped seeing me as a nurse, just as disabled.

Blue badge parking, as it is everywhere, was an issue from the start. Everyone used the blue badge spaces – deliveries, able-bodied staff and visitors. Actions to stop inappropriate parking resulted in nasty anonymous threats against me. In the end, my employer repainted the lines and took a harder stand. It’s still a sore point for some staff.

I returned to work two years ago. Initially I was angry at becoming disabled, and terrified of the future. It took time to heal and although there are still occasional issues, most are part of being an employee, not just a disabled one. Occasionally I have to remind people of the help I need, but that’s OK: it proves that they now see me, not the disability.

I think my experiences have made me more insightful, patient and sensitive and, I believe, a better nurse.

Because I know the DDA, as a union rep and as a nurse, I help people return to work or cope with disability, directly and through policy work. I’m no longer angry or terrified.

I thought my career was over: in reality, a new one was just beginning.

BETHANN SIVITER: CAREER PATH

• 1982-1984 and 1994-1999: Nursed in the USA
• 1999: Moved to the UK from the USA
• 2002: Received a UK nursing diploma from the University of Central England
• 2003: Qualified as a district nurse at the University of Wolverhampton
• 2003-2005: District nurse team leader for a nurse-led GP practice
• 2005-present: Consultant nurse for a large PCT. Has written two books: The Student Nurse Handbook (Elsevier, 2004, 2008) and Newly Qualified Nurse's Handbook (Elsevier, 2008). Currently working on a book about disability in cooperation with another disabled healthcare worker

Discitis

Posted by SARAH DARKE at 15 Feb 11 14:20
Dear Bethann, I read your article and it moved me to tears, I am a qualified psychiatric nurse who was finally forced to give up re continuing back problems. In 2001 I contracted Discitis in 3 lumbar discs as a direct result of Discogam. At the time I had never heard of the condition or been aware of the risks of the proceedure. It was horrific, rendering me incontinent and completely housebound on and off for years. However, after many years I have help and with the use of a powerchair and motability car I can now access outside and am moving towards a new career in photography after doing an MA, so life doesnt end it just changes and along the way I have met many amazing people, but never anyone with Discitis, and still most professionals know little about it, so thankyou for your inspiring article and bringing it to others attention. Sarah Darke

Thanks Darkies

Posted by Bethann Siviter at 16 Mar 11 12:01
Sarah, the saddest part os that too many healthcare professionals- doctors!- dont know about Discitis... I know the pain and consequences, as do you, is immense. If you want to chat, please feel free to contact- Im on Facebook. WOuld love to natter. Thanks for your feedback.

Nice to know

Posted by Adam Hope at 08 Apr 11 19:41
Hi Bethen Its nice to know I'm not the only nurse out there suffering from a disability. I recently qualified as a nurse which was a great struggle coping with a chronic illness and the course. I some times feel as though I'm a fraud when i say im disabled a nurse, as they seem so incompatible. But reading about your story has made me realise that Im not the only one out there, and its just an awful stereotype that nurses cant be disabled and carry out care.